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Hypertrophic cardiomyopathy -sensitization day is February 26th

Hypertrophic cardiomyopathy (HCM) is an underdiagnosed genetic heart disease. Awareness through interest in interest can help increase the diagnostic quotas and proper management.

HCM is when the left ventricle (the lower section of the heart muscle) becomes thick and stiff. Hcm reduced The amount of blood that the heart can bring in with every blow and pump out, and the condition can deteriorate over time.

HCM can run in families. Up to 1 out of 200 to 1 out of 500 people have HCM, but many don't know that they have it. Malcium diagnosis is also common, with symptoms such as shortness of breath compared to asthma and racing heart frequency compared to panic attacks or anxiety.

Awareness of HCM can help support the early diagnosis to support early detection. If people know that they have HCM, they can monitor and treat the condition. Treatment can help reduce the risk of serious health consequences. So you can get involved.

People with HCM could have few or no symptoms. You may only have symptoms during training or a kind of physical activity.

  • Breast pain, especially when moving or exertion
  • Shortness, especially when moving or exertion
  • Dizziness or drowsiness
  • Fainting
  • Swelling in ankles, feet or lower legs
  • Arrhythmia (irregular cardiac arrhythms)
  • fatigue

You may receive an HCM diagnosis after a doctor refers it to test. Often this only happens if you have a family history of HCM or have certain heart symptoms.

A doctor can test if you have:

  • A heart noise (Swishing Sound in the heart)
  • Unusual electrical heart activity measured by an electrocardiographer (EKG)
  • Hard imaging that shows possible HCM
  • Symptoms of HCM
  • A related first degree with HCM

The first degree relatives are the parents, children and siblings of someone with HCM. A doctor can also recommend examining other close relatives.

Since HCM can develop over time, doctors can regularly scan a person in old age. If there is a well -known family history, screening takes place every 1 to 3 years between 12 and 21 years and every 5 years over 21 years.

To diagnose HCM, a doctor carries out tests to look at, hear and measure your heart. Some tests include:

  • Echocardiogram (heart -ultrasound)
  • Transophageal Echo (t -shirt)
  • EKG
  • Heart -mrt
  • Heart CT
  • Holter Monitor test
  • Stress test
  • Gene tests

At HCM there is a higher risk of developing other heart problems such as atrial fibrillation, which can lead to blood clots, cardiac arrest or stroke.

One way to get involved is to take part in certain events in HCM Awareness Day – February 26, 2025.

You can sharpen awareness of HCM all year round. By sharing your history and working with interest groups, you can set a face to the disease. You can also share important information about HCM and the path to diagnosis.

Here are some ways to get involved.

Enter a representative group

Groups such as the HCMA lawyer for people with HCM towards governments and the public. By joining you can take part in these efforts.

HCMA promotes public order, scientific research, education and access to specialized health care for people with HCM. It also offers support networks for those who live with HCM.

When you become a member, increase the number of people for whom HCMA speaks. They also have a voice to promote patient -oriented health care. Find out how to become an HCMA member on his website.

Take part in fundraising events

Another way to get involved is to take part in fundraising events. Organizations such as the HCMA offer various ways to apply urgently needed resources, such as: B. “Donation campaigns”. The events help to build community and connections between HCM affected people.

Share your or the story of a loved one

A strong way to strengthen awareness of HCM is to share your personal experiences with it. The American Heart Association (Aha) On its website, HCM offers personal stories and shows the far -reaching effects of the disease on people in communities across the country.

The HCMA has a faces of the HCM campaign with individual stories of people and their families. These stories appear on the social media and YouTube channel of the HCM, where people share their reasons for compliance with their own words.

Join a self -help group

While 1 out of 200 people may not sound how many, you don't have to feel isolated with HCM. There are support groups of people with an HCM diagnosis that come together to talk about their experiences.